For about a year I had BAD stomach pain. I went to the hospital so many times. All they thought it was, was ACID. but finally....
On July 28th, 2010, I was diagnosed with Crohn's Disease (also anemia). I was scared, I felt alone. I was diagnosed at LGH. I went through many tests such as; Blood tests, Urine tests, a Colonoscopy, a Endoscopy, a CT scan, a Ultrasound, and my first IV. They prescribed me with so much medicine. I was taking Pentasa & Entocort EC for the Crohn's and Iron for the anemia. I also took multivitamins. My mom had issues getting me the Entocort. Maybe that't why it stopped working...Or maybe it just wasn't right for me. So the pain came back.
Around September of 2010, I was back in he hospital. My mom, my GI doctor (Dr.Devinyi), and I discussed a new treatment for the Crohn's which is called Remicade. Remicade is an infusion (IV). After you get the first dose you wait 2weeks later to get the second dose, then four weeks later for the third dose, and then you get every following dose every 8 weeks. I really don't like needles so this was hard for me. But I'm used to it now.
Remicade was going so well. But out of no where the pain came back and was worse than it's ever been. I felt like dying, that's how bad the pain was. I was scared, I didn't know what was going to happen. I just wanted everything to go back to the way it used to be (when I was always smiling and laughing instead of crying). I took tests and the tests showed that I had a blockage. So I was scheduled to get surgery on April 15th. But the pain was too bad for me to wait. So...
On March 31st, 2011, I was admitted at LGH for the 3rd time. I had lost so much weight and wasn't eating much so they decided to place a picc line in my arm. I was terrified of the thought of having a tube from my arm vein to my heart. But I knew it was for the best so agreed to go threw with it. They gave me medicine, Nutrition, and Steroids through this picc line & took blood from it. I didn't eat much because it hurt most of the time I ate. So they put me on a clear liquid diet.
I took many more tests and they showed that not only was the blockage larger, but the inflammation also grew. This meant that surgery wouldn't happen till the inflammation goes down which would take a while. But, I didn't want to wait. I wanted to get this over and done with. So, we didn't know when surgery would happen. On April 7th I was still in the hospital but we had a baptism for me that day. So the priest came to the church and I was baptized. Not long after I was transferred to Hershey Children's Hospital.
Hershey was too far from home for me. I didn't have much visitors because of the distance. Honestly, I think that the whole transfer was unnecessary because they didn't even do much tests.
Finally, they decided that I couldn't get the surgery anytime soon because of the inflammation. So on April 13th, 2011, they sent me home with the picc line still in my arm. My mom had to learn how to start the machine and keep the picc line clean and other stuff like that. This was an over whelming process for both of us but we got through it.
I started home schooling for about a week but it wasn't the same. I missed all of my friends. So we talked with my doctor and changed the time I get hooked up. So I started school again. I went to Graduation (06.09.11) and Prom (06.10.11) but i honestly did not feel pretty with the picc line in. However, I still had lots of fun.
July 1st, 2011, I finally got the picc line out. After 3months. I was excited yet nervous. But it happened so quick and didn't even hurt. However it did feel weird.
I am still going through struggles whether it's with the Crohn's or just regular teenage stuff. But thanks to the help of my favorite idol and my inspiration @JUSTINBIEBER i will keep fighting and.....................................
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P.S. I am a Belieber and always will be one but sadly I have NEVER met Justin or even been to one of his concerts. I will #Someday. I LOVE YOU JUSTIN BIEBER!! THANK YOU SO MUCH!!
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